Do you know someone who has made an impact on the epilepsy community in Delaware? Nominate them for the Delaware Epilepsy Warrior Award so we can honor them for their care, support and dedication. The winner will be announced on April 26, 2026 at our Afternoon With EFDE Event. Self nominations will be accepted as well. The deadline to nominate is March 9. Click here for the nomination form:
EFDE is excited to share that the mother of an epilepsy warriors here in Delaware is organizing a monthly Support Group for parents and caregivers of those living with epilepsy. This informal support space will allow parents/caregivers the chance to connect, share and support one another in a judgment-free environment. The group will meet on the first Monday of each month at 6:30 p.m. via Zoom, beginning on Monday, March 2. Please click here for more information and to RSVP:
A big thank you to everyone who traveled to Dover to attend EFDE's Legislative Luncheon. We had a wonderful turn out and support from legislators and their staff. We will continue advocating for our epilepsy warriors throughout Delaware by raising awareness and educating others.
Mark Your Calendar
The Epilepsy Foundation of Delaware is thrilled to join @UnitedWayDE and @SpurImpact in kicking off the statewide day of giving for 2026 in Delaware. #DoMore24DE is a statewide giving day launching at 6 p.m. on March 5. Please considering donating on March 5th – 6th during "Do More 24 Delaware" to support the EFDE community in this statewide giving movement. More details to come.
Stay Informed With EFDE
Want to receive reminders for upcoming Meet & Greets or EFDE events and programs? EFDE is excited to announce our Text Messaging Program! Join our list by clicking below and providing your mobile number and consent to text. Stay connected on the go and don't miss an EFDE event or update again!
Please consider participating in a research study being conducted by East Carolina University. Participants will have the option to complete an online survey and/or interview through Webex. For more information, click here:
The Cleveland Clinic Epilepsy Center is conducting a study to better understand the nonmedical factors that influence a patient's decision to undergo epilepsy surgery. As part of the study, patients who were evaluated for epilepsy surgery and received a recommendation for either surgery or a stimulation device are invited to complete a brief, confidential survey. Click here for details:
A big thank you to everyone who has made a gift to the 2025-2026 EFDE Annual Fund! Your generosity is essential in providing educational and support programs, increasing awareness, and leading advocacy efforts throughout Delaware. We continue providing all services and resources at no charge, thanks to your support. A shout out and thank you to January’s donors:
Libby Cusack - Brian Bartley - Stephanie Brooks - John & Judy Coll - Caesar Rodney Rotary Club - SECC United Way of Delaware - Matthew Cloud - JP Morgan Chase Foundation - Judith Curtis - Ellsworth Brown
Don’t see your name? Make your gift today and join this fantastic group of supporters.
Our daughter Jaime was diagnosed with epilepsy when she was about 11 years old. We first learned about her condition from the school principal after she was found staring at her locker and not responding. This prompted us to visit a neurologist, where she received her official diagnosis of epilepsy.
Our neurologist introduced us to the Epilepsy Foundation of PA, where we learned more about epilepsy and connected with other families facing similar challenges. We attended conferences hosted by the foundation and even traveled to Harrisburg to meet with legislators, sharing our story and advocating for epilepsy funding in the state budget.
During the summers, Jaime attended an Epilepsy Foundation camp and later became a counselor there. She eventually invited me to join her at camp, where I volunteered as a registered nurse. It was inspiring to see children and young adults with seizure diagnoses swimming, climbing rock walls, playing games and sports, and learning how to help each other during a seizure. Even though it was a tiring week, I felt really enriched by it!
As Jaime has grown and matured, we have faced numerous challenges together. The school nurse had my phone number on speed dial. There was one incident when the local police were called because a neighbor saw Jaime and thought she looked "out of it." I quickly learned about tracking apps, which we implemented right away. Now that Jaime is working, she must manage her commute while also worrying about the possibility of having a seizure at work. By connecting with others whose children or spouses have epilepsy, I have learned that we are not alone, and we will continue to persevere through this.
I’m so excited to be living in Delaware and getting involved with the Epilepsy Foundation! Volunteering has already opened some wonderful opportunities for me to meet amazing people who are navigating their own journeys with epilepsy. It’s truly been a privilege to hear the unique stories of these inspiring individuals, each showcasing incredible strength and resilience. I look forward to dedicating more time to this cause and collaborating with others to make a positive impact in the lives of those affected by epilepsy!
Join EFDE in wishing a veryHappy Birthdayto all celebrating a February Birthday!
Teresa C. - Chuck B.
Have an upcoming birthday? Click here to let us know so we can give you a shout out and celebrate you!
.png)
.png)
.png)
.png)
.png)
.png)
