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May 2026 Newsletter
Join Us Tomorrow
EFDE and UD's Epilepsy Awareness Club invite you to a fun evening of bowling and friendship TOMORROW, Saturday, May 2 from 6:00 p.m. to 8:00 p.m. We will be meeting at Bowlero in Wilmington. Bring a friend and your best game for this FREE event. Complimentary food & drinks will also be provided. We look forward to seeing you there!
Parents & Caregivers, Let's Connect
Want to meet others caring for a child with epilepsy? Need a place to share your feelings? Then this monthly Support Group is for you! Organized by the mother of an epilepsy warrior here in Delaware, this informal support space will allow parents/caregivers the chance to connect, share and support one another in a judgment-free environment. Monthly attendance is not required - join us when you can. The group will meet THIS Tuesday, May 5 at 7:30 p.m. via Zoom. Please click here to register:
Please plan to join us on Monday, May 18 from 6:00 p.m. - 7:00 p.m. at the Kent County Public Library (497 S. Red Haven Lane, Dover, DE) for an in-person Meet & Greet. Meet others who are on a similar journey and learn about what's new and coming for those living with epilepsy. More details on the topic coming soon.
Health & Wellness Fair
EFDE is happy to be participating and spreading epilepsy awareness at Sunnyside Elementary's Health Fair on Wednesday, May 27 from 5:30 p.m. - 7:30 p.m. The event will take place at 123 Rabbit Chase Lane, Smyrna, Delaware. You are welcome to attend, and be sure to stop by our table to say hello!
Lace Up Your Sneakers!
It's almost here! Join us for an exciting morning on June 6 at Glasgow Park for our Freedom From Seizures 5K North to help raise awareness and support the Epilepsy Foundation of Delaware. Register to run, walk, or form a team, come to cheer on the racers, or donate to one of our fundraisers! However you choose to support our mission, it's greatly appreciated! Click here for details and to register:
Congratulations to Victoria Piecara, 2026 Delaware Epilepsy Warrior Award winner! Victoria's son lives with epilepsy and she passionately spreads awareness to family, friends, and at her son's school, where she organized a seizure awareness assembly and implemented dress down Fridays during Epilepsy Awareness Month, with donations going to EFDE. She created a virtual support group for parents of warriors as a space for connection, shared experiences, and reassurance for those navigating this journey. Victoria is a voice when others feel overwhelmed and an advocate on behalf of her son and those living with epilepsy. Last, but not least, she annually organizes the largest team at EFDE's 5K North. Victoria, thank you for all that you do for the epilepsy community in Delaware!
A Treasure Chest of Fun
A barrel of thanks to the crew who came out for our Afternoon With EFDE: Pirate's Paradise. A jolly good time was had by all, and we thank our dedicated committee, our loyal sponsors (Nemours Children's Health, UCB, Schell Brothers, Clean Energy USA, Jazz Pharmaceuticals, and Neurelis), the talented musicians of Minus 2 Plus 1, all those who donated to the auction and raffles, those who won some awesome prizes, and to Mulligans for hosting our event. To view more photos from the day, click here:
Save the date and plan to join EFDE on Wednesday, June 3 for the Wilmington Blue Rock's Non-Profit Appreciation Night! The game begins at 6:35 p.m., however there will be a pre-game introduction of our oganization. We will also have a marketing table on the concourse and our group will be announced during the game. Other highlights of the evening include "$2 Dog Wednesday" and "Wet Your Whistle Wednesday" ($5 Miller Lite). Discounted group tickets will be available soon, so be on the lookout. We look forward to a fun night with our community!
Calling Behavioral Health Providers
Are you a behavioral health provider interested in helping people with epilepsy and non-epileptic seizures? The Epilepsy Foundation Epilepsy Learning Portal has a variety of courses that can help make you knowledgeable in the mental health needs of this population. By taking the courses and providing the Epilepsy Foundation of Delaware your information, you can join our Behavioral Health Preferred Provider Network. It’s that simple!
Interested in learning more? Click below or scan the QR code, take at least one of the courses, get your FREE CEs and select that you want to be a part of the network.
Want to receive reminders for upcoming Meet & Greets or EFDE events and programs? Then join EFDE's Text Messaging Program by clicking below and providing your mobile number and consent to text.
Stay connected on the go and don't miss an EFDE event or update again!
Just a reminder that EFDE offers a FREE Transportation Program.
If you are a Delaware resident, have been diagnosed with epilepsy/seizure disorder, and under the care of a neurologist, then you may qualify for this free program. Rides are provided by Uber Health and must be scheduled through EFDE.
A big thank you to everyone who has made a gift to the 2025-2026 EFDE Annual Fund! Your generosity is essential in providing EFDE the resources to continue providing educational and support programs, such as the annual conference and CDSMP, monthly Meet & Greets, Seizure First Aid Training to any organization throughout the state, and transportation for those unable to drive. These are just a few of the things we do, thanks to your support, and even more remarkable is that all services and resources are provided for free. Keep in mind, no gift is too small and will make an impact. A shout out and thank you to April's donors:
Brian Bartley - Joseph Cunningham - United Health Group - Fusion Racing - Ellsworth Brown - John Pollard - JPMorgan Chase Foundation - Brian Miller - Matthew Cloud
Don’t see your name? Make your gift today and join this fantastic group of supporters.
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