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Olmstead at 27: 

Why We Stay Involved, Aware, and Ready

 

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This week marks the 27th anniversary of Olmstead v. L.C., the landmark 1999 Supreme Court decision that affirmed what families across Illinois have always known: people with disabilities belong in their communities, not in institutions. For 27 years, this ruling has given people the legal footing to fight for services at home, near their families, schools, and jobs. That's worth celebrating and it's worth protecting.

Recently, the U.S. Department of Justice issued an opinion signaling it may step back from enforcing key Olmstead protections. It's important to understand what this does and doesn't mean. As The Arc of the United States made clear, Olmstead remains the law of the land, and the right to live in the community remains one of the most basic civil rights people with disabilities hold. Nothing about this opinion erases the ADA, Section 504, or the integration mandate. But rights are only as strong as our willingness to defend them, especially when enforcement at the federal level can no longer be taken for granted.

That's exactly why this moment calls for us to stay involved, aware, and present. This fight isn't new for The Arc of Illinois or for any disability advocates. Our movement was built by families and people with disabilities who rejected institutionalization and demanded the right to live, learn, work, and belong in the community, and that work continues today in courtrooms, in Springfield, in Washington, and in every chapter across Illinois. Whether it's showing up for a hearing, staying current on policy changes, or simply telling your story to a legislator, your presence matters. Together, we keep Olmstead's promise alive. Not just as a legal precedent, but as a lived reality for every person and family we serve. We will continue to monitor this situation, and we will continue to advocate with all of our hearts for what's right. Twenty-seven years ago, two women refused to accept that institutions were the only option. Today, we refuse to accept anything less than the community they fought for.

In Solidarity,

Samantha M. Alloway
Executive Director, The Arc of Illinois 

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