Parents and guardians can now enroll their young children (ages 2-6) and participate in the unhide® Solve Together Unified Platform (the Unified Platform) on their children's behalf.
School-age children (ages 7–12) can complete surveys and track symptoms side-by-side with their parents/guardians.
Teens (ages 13+) can enroll themselves with parental consent, and will also be able to link data from wearable devices, such as an Apple Watch. This milestone expands the reach of The Unified Platform, making it one of the few large-scale digital health research initiatives actively collecting real-world data from pediatric participants.
“For too long, children and teenagers have not been able to narrate the lived experience of their illnesses themselves, and their voices have been missing from clinical research. Allowing teens and school-age children to participate directly in unhide® changes that.
In addition, enrolling pediatric participants will allow researchers to better understand the effects of chronic illness on critical periods of brain development across the lifespan,” said Dr. Megan Fitzgerald, Principal Investigator.
The Unified Platform tracks symptoms, wearable device data, and health experiences across 30+ chronic conditions to accelerate research on brain inflammation, immune dysfunction, and related illnesses. Pediatric participation will help researchers understand how these conditions begin, progress, and impact quality of life in children and teens, paving the way for earlier interventions and better care.
Families interested in joining can learn more and sign up at www.unhidenow.org.
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A free webinar hosted by Solve M.E. - The Unified Platform: Advancing Research Across ME/CFS, Long Covid, and Other Chronic Conditions
Hear from leaders at Solve M.E., the Brain Inflammation Collaborative, and a CareEvolution Platform Architect on what sets The Unified Platform apart.
Learn how the unhide® Solve Together Unified Platform facilitates partnerships, successfully improves patient-provider communication, enables robust recruitment and multidimensional data collection, and serves as a catalyst for better health among all who are impacted by neuroinflammation.
Better medical care for people with brain inflammation isn't a 'someday' problem.
It's a daily reality for millions right now.
We believe better clinical research is key to better, more accurate diagnoses, better treatment options, and better care for everyone who needs them.
We value patients as partners and leaders, not just participants.
We understand that the barriers to accomplishing these goals are systemic and complex. We believe accessibility, transparency, and cultural humility must be central to everything we do. Better research can only be achieved by operating differently.
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