Take a groundbreaking look inside the data, stories, and vision shaping the future of infection-associated illness research.
This webinar brings together leaders from the Brain Inflammation Collaborative and the unhide® Platform to share new insights from one of the largest, participant-driven research initiatives in the field.
What You’ll Learn
Dr. Megan Fitzgerald will present early findings from unhide®, a digital platform that allows people with ME, Long COVID, POTS, Lyme, and related complex chronic illnesses to participate in research from home. Through surveys, symptom logging, wearable device integration, and secure medical record sharing, participants are generating rich, real-world data that is rarely captured in traditional studies.
You’ll hear new insights about:
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Who is participating — including age, gender, reported diagnoses, and comorbidities
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How individuals with severe illness and mobility limitations are helping advance science
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Why combining self-reported, wearable, and clinical data is transforming patient-centered research
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The critical role of understanding comorbidities in infection-associated illnesses
Behind-the-Scenes Perspective on Research Inefficiencies
Drawing on over a decade of experience as a biomedical research scientist, Dr. Matthew Menendez will share personal stories from the research trenches—illustrating the inefficiencies that slow progress and how unhide® is uniquely positioned to overcome them.
Where We’re Headed — And Why It Matters
Co-founder and CEO Christy Jagdfeld will discuss the future of patient-centered research and the urgent need for sustainable funding to accelerate discovery. She will highlight how The Brain Inflammation Collaborative is building the infrastructure, tools, and partnerships needed to support researchers and advance research on infection-associated illnesses.
Don’t miss this opportunity to see the power of digital health, real-world evidence, and patient-led science at scale.
Register today to submit your questions for our guest speakers!
We believe information is power. This webinar is free for anyone who would benefit from the information shared. Have the means to pay your own way? Would you consider making a 100% tax-deductible donation to cover the cost of one person attending?
Your support is critical to our mission. Thank you for partnering with us! |
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