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February 2025 Newsletter

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EFDE Unveils New Program

The EFDE is excited to announce our new Transportation Program! If you are a Delaware resident, have been diagnosed with epilepsy/seizure disorder and under the care of a neurologist, then may qualify for this FREE program. 

Rides are provided by Uber Health and must be scheduled through EFDE. 

For more details, click here: 

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Tickets go on sale at the end of the month!

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Nominate a Warrior Today

Do you know someone who has made an impact on the epilepsy community in Delaware? Nominate them for the Delaware Epilepsy Warrior Award so we can honor them for their care, support and dedication. The winner will be announced on April 26, 2025 at our Evening With EFDE Event at Schellville. Self nominations will be accepted as well. The deadline to nominate is February 28. Click here for the nomination form:

If you are a School Nurse or know someone who is, please share this information and plan to attend this very important program!
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Click here to register: 

 

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Legislative Luncheon Thank You

A big thank you to everyone who traveled to Dover to attend EFDE's Legislative Luncheon. We had a wonderful turn out and support from legislators and their staff. We will continue advocating for our epilepsy warriors throughout Delaware by raising awareness and educating others.

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Exciting News! EFDE is honored to have been chosen by the Gals That Give Charity as a beneficiary non-profit. Mark your calendar for Wednesday, October 22, bring a friend, and plan to join us for a fun evening, which will include dinner, a pick-a-prize auction, and a 50/50. More information to come and tickets go on sale next month.
Gals That Give provides a platform for local non-profits to raise both funds and awareness through their monthly events. The evening is filled with hundreds of women (and some men) gathered for a delicious dinner, uplifting camaraderie, and a meaningful purpose. Each event highlights and focuses on a local non-profit whose mission positively impacts the community, and also fundraises with a robust auction where 100% of funds go to the monthly non-profit.
We are so grateful to Gals That Give for this opportunity and look forward to seeing our community there!

Auction Donations Needed

Do you have a vacation home? Tickets to a sporting event? A new designer handbag or jewelry? Would you be willing to donate them or another item to EFDE for our Evening With EFDE Auction or our Gals That Give Auction? We are collecting items and baskets for BOTH events, so any donations would be greatly appreciated! If you have questions or need additional information, please call our office at 302-999-9313. Thank you! 

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Annual Fund Update

A big thank you to everyone who has made a gift to the 2024-2025 EFDE Annual Fund! Your generosity is essential in providing educational and support programs, increasing awareness, and leading advocacy efforts throughout Delaware. We continue providing all services and resources at no charge, thanks to your support. A shout out and thank you to January’s donors:  

Brian Bartley - JPMorgan Chase Foundation - Anne Siemer

Don’t see your name? Make your gift today and join this fantastic group of supporters. 

Saving Lives With SFA

The Epilepsy Foundation of Delaware was pleased to present Seizure First Aid Training to the following organization during the month of January:

 Delaware Correctional Officers

If your workplace or school would benefit from Seizure First Aid Training, contact us to schedule your FREE Zoom or in-person course. 

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What is Seizure First Aid Certification?

Seizure First Aid Certification training increases the knowledge, skills and confidence to recognize seizures and safely administer seizure first aid. Those who successfully complete the course will receive a two-year certification.

Knowing how to help someone during a seizure can make a difference and save a life. While everyone should know basic seizure first aid, becoming seizure first aid certified helps further with learning about epilepsy, recognizing signs of a seizure, using basic seizure first aid steps, and knowing when emergency medical help is needed.

Seizure First Aid Certification is designed for people who:

  • Have a family member, loved one, or friend with seizures
  • Have a job where you provide care for people with seizures
  • Have a job where you work with the public or work with someone who has or could potentially have seizures
  • Coach or lead groups

If your workplace or school would benefit from Seizure First Aid Training, contact us to schedule your FREE Zoom or in-person course. 

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Meet Sarah Mullins, M.D....

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I volunteer for EFDE because I am an epilepsy mom and family doctor. My son AJ had his first seizure at 5 months old and was diagnosed with Dravet Syndrome, a severe, drug-resistant form of epilepsy with many other challenges. AJ was admitted to the ICU monthly as an infant and struggled with warm temperatures and bright sunlight. After many trials of medicine, he began the ketogenic diet at 3 years old and we enjoyed 5 years without an ER visit or hospital stay. He loved school, his physical, occupational and speech therapists and aids, who helped him run, learn to type and read. Our family was able to enjoy the beach and playing outside with this good seizure control. When he was 8 years old, he had an unexpected prolonged seizure and died. I serve with hope for all families to enjoy a good quality of life and the best possible outcomes living with epilepsy.

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Join the EFDE in wishing a very Happy Birthday to all celebrating a February Birthday!

Teresa C. - Chuck B.

Have an upcoming birthday? Click here to let us know so we can give you a shout out and celebrate you!

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Monthly Events & Programs

  • Tuesday, February 11 - School Nurse SFA Training - 5:30 p.m. - Zoom
  • Tuesday, February 25 - Seizure First Aid Training - 5:30 p.m. - In-person with UD Epilepsy Awareness Club
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